The story of a boy turning into stone sounds like a fairytale, but for 11-year-old Ramesh Kumari, this story is a reality. He lives with an extremely rare skin condition that left him deformed and barely able to move, but his life was changed by a celebrity’s generosity and will to make a difference.
His story is shocking, but the help he receives from the most unexpected of places is truly inspiring. Let’s read more about him.
#1 Ramesh Was Like Any Other Baby At Birth
Ramesh Kumari was born a normal baby in Nepal, but 15 days after birth something peculiar began to happen. Ramesh began growing hard, black scales were appearing on top of his skin and his mother was all terrified.
#2 Doctors Claimed It Was Simply A Fungal Infection
Ramesh’s mother Nar took him to doctor and they told her there was nothing they could do. It turns out it was not a simple fungal infection, but something far more serious.
#3 His Condition Is Extremely Rare And Debilitating
Ramesh was eventually diagnosed with a genetic condition called harlequin ichthyosis. It is a rare genetic disorder that causes a child’s skin to grow hard and thick, and it requires intensive treatment and care.
#4 His Parent’s Couldn’t Afford His Care
Ramesh’s parents, Nar and Nanda, couldn’t possibly afford the necessary treatments to cure his condition. All they could do was make their young son as comfortable as possible. He could hardly move or speak, and it was almost impossible to make friends. Ramesh needed a miracle.
#5 One Star Saved The Day When She Came To Town
#6 The Joss Stone Foundation Was Raising Money For Ramesh
Her concert in Kathmandu was being held to raise money for the little boy’s treatments. The singer even visited Ramesh and brought him gifts, a charitable act by a generous celebrity.
#7 The Little Boy’s Condition Began To Improve
Ramesh was in bad shape when he started treatment, but with the generosity of the Joss Stone Foundation, he is expected to be able to walk again. This is a remarkable act of selflessness by a celebrity, and her help has changed this young boy’s life forever.